Showing posts with label research. Show all posts
Showing posts with label research. Show all posts

Logo for The Social Disability History Project, image of a person in a wheelchair and textDisability Social History Project
About the Disability Social History Project
"The Disability History Project is a community history project and we welcome your participation. This is an opportunity for disabled people to reclaim our history and determine how we want to define ourselves and our struggles. People with disabilities have an exciting and rich history that should be shared with the world."

DisabilityStatistics.org

What is the objective of DisabilityStatistics.org?

"The DisabilityStatistics.org web site condenses several data sources into a single, user-friendly, accessible, Internet resource. It also provides essential background information on key issues related to disability statistics."

What is the history of DisabilityStatistics.org?
"For several years, researchers at Cornell University, with funding from the National Institute on Disability Rehabilitation Research (NIDRR), have generated and distributed a large volume of national statistics on the prevalence of disability and the employment, income, and poverty status of people with disabilities. These statistics were often calculated over many years, across states, by type of disability and/or across demographic characteristics. Numerous scientific research papers, policy briefs, academic journal articles, book chapters, and research summaries have drawn on these disability statistics. Recently, the demand for additional demographic and statistical information has grown as a wider audience becomes interested in disability statistics.

To meet these needs, researchers at Cornell University designed the DisabilityStatistics.org web site to make disability statistics and related demographic information available and accessible to a broad audience via the Internet."

The Advocacy & Empowerment for Minorities Program (A&E)
"The Advocacy & Empowerment for Minorities Program (A&E) is an applied research center in the Department of Disability and Human Development at the University of Illinois at Chicago. The program's mission is to develop, implement and evaluate interventions and strategies that improve the quality of life for ethnic minority individuals with disabilities and their families. A & E is a community based program that incorporates participatory action research and intervention. Since its inception over 12 years ago, A&E has worked with over 400 individuals with disabilities and/or family members in the community and numerous community-based organizations. This interdisciplinary center administers multiple projects funded by federal, state and local grants and contracts."

Disability Studies at Syracuse
"The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy, which was founded by Dr. Burton Blatt in 1971. The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society."

Founding SU Academic Programs and Centers

Disability Rights and Independent Living Movement Oral Histories/Archives
"The DRILM collection consists of more than 100 oral histories with leaders and shapers of the disability rights and independent living movement from the 1960s onward and an extensive archive of personal papers of activists and records of key organizations."

Access these collections by:

Alphabetical listing of individuals and organizations
Geographical location of individuals and organizations
Organization name
Research and study topics

"UC Berkeley’s Bancroft Library, through its Regional Oral History Office, has recorded and continues to record the stories of individuals who have made significant contributions to the origins and achievements of these movements. The Bancroft Library also collects, preserves, and provides access to the papers of organizations and individuals of importance to the struggles for disability rights and independent living. The collection highlights the broad range of strategies and tactics employed, the diverse experience of the activists involved, and the intersection of disability in America with the issues of race, ethnicity, class, and gender."

Person-centered planning Education Site

“What is person-centered planning?
We're glad you asked! Person-centered planning is a process-oriented approach to empowering people with disability labels. It focuses on the people and their needs by putting them in charge of defining the direction for their lives, not on the systems that may or may not be available to serve them. This ultimately leads to greater inclusion as valued members of both community and society.

Person-centered planning involves the development of a "toolbox" of methods and resources that enable people with disability labels to choose their own pathways to success; the planners simply help them to figure out where they want to go and how best to get there.

In this site you will find:

  • an overview of the person-centered planning process
  • a self-study course covering the basic processes involved
  • a quiz section to help you focus on areas you may need to cover more thoroughly
  • a compendium of readings and activities for you to use on your own
  • various links and downloadable resources.

. . . all of which are geared toward facilitating and enhancing your awareness of and appreciation for person-centered planning. We think you will enjoy your visit with us!

Using a screen-reader program? No problem! This site is completely accessible, and all the study materials found here are available in text-only formats that you can download and peruse at your convenience.”

The World Institute on Disability (WID)

"The World Institute on Disability is an internationally recognized public policy center organized by and for people with disabilities. It works to strengthen the disability movement through research, training, advocacy and public education to help people with disabilities throughout the world enjoy increased opportunities to live independently.

Founded in 1983 by leaders of the Independent Living Movement, WID's work focuses on issues and problems that directly affect people’s ability to live full and independent lives. WID’s programs address employment, economic development and financial stability issues; conduct research and policy analysis on personal assistance services, accessible health care, technology and other topics; and provide assistance to non governmental organizations (NGOs) and disabled leaders in developing countries.

A majority of the Board and staff are persons with disabilities."

The National Center on Physical Activity and Disability (NCPAD)
"NCPAD is an information center concerned with physical activity and disability. Being physically active is good for every body. That's a message you will find many times on this site. Being active is an important part of getting and staying healthy. One 'must read' item on this website is our monograph on Can Disability, Chronic Conditions, Health and Wellness Coexist? in which author June Kailles discusses the common confusion people have about the relationship between having a disability and being healthy. Once you realize that EVERY BODY needs some activity to get and remain healthy, you will find we have a great many resources to help you find how YOU can participate. We have information and resources for EVERYONE, from guidelines to consider before starting any kind of exercise program to factsheets on many popular activites, games, recreational pursuits, and sports that have been adapted to allow people with disabilities to participate as fully as they wish, become as active as they wish."

Waisman Center

M I S S I O N
The Waisman Center's mission is to advance knowledge about human development, developmental disabilities, and neurodegenerative diseases.

A C T I V I T I E S
In pursuit of its mission, the Waisman Center incorporates many types of activities in four major areas: research, training, service, and outreach.

Research: Scientists at the Waisman Center seek answers to many questions about the causes, consequences, and cures of developmental disabilities and neurodegenerative diseases. Examples include: How does the nervous system develop? How are brain structure and function connected? How do we inherit diseases? How does vision develop? How do we acquire language? What factors influence learning and school success? How do families with a child who has a disability cope over the life-span? How can we translate new gene and stem cell discoveries into treatments?

Training: Training of undergraduate students, graduate students, and post-doctoral fellows occurs throughout the Waisman Center. This training prepares the next generation of researchers, teachers, and health care providers in programs related to people with disabilities or neurodegenerative diseases.

Service: The Waisman Center provides extensive on-site and community-based programs that promote the health, education, well being, and independent living of people with developmental disabilities and their families. Examples include the Center's seven specialty clinics and a preschool where children with and without disabilities learn together, community-based early intervention services for children birth to 3, and a behavioral support program.

Outreach: The Waisman Center shares its resources in many ways-through public lectures and seminars; through consultation to physicians, educators, and other professionals; through an internet web site and resource center specializing in topics related to developmental disabilities; and through articles in professional journals, books, and other publications."

Institute on Disability and Human Development

"The Institute on Disability and Human Development (IDHD), a University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) is dedicated to promoting the independence, productivity and inclusion of people with disabilities into all aspects of society. The mission is addressed by conducting research and disseminating information about disability to academicians, policymakers, businesses, government agencies, service providers and the general public. The Institute's mission includes providing an extensive array of clinical and community service activities and, through the Department of Disability and Human Development and other academic departments, offering interdisciplinary pre-service training. The values of cultural diversity, consumer choice and self-determination are emphasized across the life span in all training, public service, and research activities of the Institute."

The Research and Training Center on Community Living
"The Research and Training Center on Community Living provides research, evaluation, training, technical assistance and dissemination to support the aspirations of persons with developmental disabilities to live full, productive and integrated lives in their communities.

Featured Publications & Products
National Residential Information Systems Project (RISP)
- For over 20 years, the National Residential Information Systems Project has been collecting and disseminating annually, national and state statistics on public and private residential services, Medicaid program utilization, expenditures, etc.
2006 RISP Report (PDF) (2007); File Size: 24.4 MB
View older RISP Reports

Quality Mall - Quality Mall is a web site that gathers and disseminates information related to or useful in promoting the quality of life for persons with developmental disabilities. It especially focuses on promising person-centered practices and innovations.

College of Direct Support - The College of Direct Support (CDS) is a computer-assisted, competency-based, interactive multimedia training curriculum for direct support professionals in community settings."

The RTC is part of the Institute on Community Integration (ICI), in the College of Education and Human Development at the University of Minnesota.


Beach Center on Disability

Beach Center on Disability

"Through excellence in research, teaching and technical assistance, and service in Kansas, the United States of America, and globally, and through collaborations with those individuals and entities dedicated to the same ends, the Beach Center on Disability will make a significant and sustainable difference in the quality of life of families and individuals affected by disability and of those who are closely involved with them."


Institute on Community Integration
"The Institute was established in 1985 on the Twin Cities campus of the University of Minnesota. We are a federally designated University Center for Excellence in Developmental Disabilities (UCEDD - pronounced U Said), part of a national network of similar programs in major universities and teaching hospitals across the country. We

are currently home to over 80 projects and four affiliated centers through which we carry out activities addressing the needs of persons with disabilities across the life span.

Mission
Activities
Program Areas
Affiliated Centers
Partners and Collaborators
Advisory Councils
Funding
Contact Information


Mission

The Institute's mission is to improve the quality and community orientation of services and supports available to individuals with developmental disabilities and their families. Rather than providing direct services itself, the Institute works with community service providers, school districts, advocacy and self-advocacy organizations, policymakers, and researchers around the world to provide state-of-the-art information and practices that support the community integration of individuals with disabilities."

The Center for Capacity Building on Minorities with Disabilities Research (CCBMDR)

The Center for Capacity Building on Minorities with Disabilities Research (CCBMDR) seeks to increase the capacity of State Vocational Rehabilitation Agencies (VR) and community-based organizations (CBOs like Centers for Independent Living and/or other agencies serving minorities with disabilities) to document the impact of their programs and develop culturally competent services. This effort is conducted in order to promote positive rehabilitation outcomes for minority individuals with disabilities. We propose to develop long-term relationships with agencies, conduct participatory research and demonstration projects, engage in active dissemination efforts, and provide state-of-the art training and technical assistance to professionals and researchers in the field.

Department of Disability and Human Development

The University of Illinois at Chicago Department of Disability and Human Development is dedicated to the interdisciplinary study of disability with the goal of removing barriers to the advancement of disabled persons. We are home to a number of active research centers and projects, including the renowned Institute on Disability and Human Development.

Research
UIC’s Department of Disability and Human Development is dedicated to the scholarly, interdisciplinary study of disability and related aspects of human development. Home to a number of active research centers and projects, the department is exploring current and prospective disability policies, conceptual models, and intervention strategies. The department houses the renowned Institute on Disability and Human Development, Illinois’ only federally designated University Center for Excellence in Developmental Disabilities Education, Research and Service. Committed to breaking down barriers to disabled persons in society, our research centers collaborate with numerous community, national, and international partners.

Centers and Projects

Center on Epidemiology and Demography of Disability Directed by Dr. Glenn T. Fujiura, the Center on Epidemiology and Demography of Disability is a collection of research projects thematically focused on evaluating trends in disability demography and disability etiologies that have implications for planning and policy development. The work is local, national, and international in scope, using state and national data systems and economic development data from the World Bank. New initiatives involve development of DD health surveillance data sets in Illinois. Projects are funded through NIDRR, CDC, and state and local grants.

Disablement in the Third World
Emerging Disabilities
Evaluation of Customer Satisfaction in WIG I
IL Family Needs Assessment
Kiley Developmental Center Evaluation

Center on Access to Disability Data
“A company based in Berkeley, CA, uses the power of information, technology, and participatory research to improve community equity, access and outcomes. Our planning work in disability, employment, independent living, and health empowers people to make personal and systems changes. This series of Chartbooks was developed with funding from the National Institute on Disability and Rehabilitation Research (NIDRR).”


Center for Disability Studies, University of Delaware
"The mission of the Center for Disabilities Studies is to enhance the lives of individuals and families in Delaware through education, prevention, service, and research related to disabilities. We promote independence and productivity so individuals and families can fully participate in the life of the community.'

Human Services Research Institute (HRSI)
"In the fields of developmental disabilities, physical disabilities, mental health and child welfare HSRI works to:

  • Assist human service organizations and systems to develop support systems for children, adults, and families;
  • Enhance the participation of individuals and their families to shape policy and service practices;
  • Improve the capacity of systems, organizations, and individuals to cope with the changes in fiscal, administrative, and political realities;
  • Expand the use of research and evaluation to guide policy and practice."